Tag Archives: ALK Rearrangement

Some Space

Posted on April 14, 2014 by

I now have some space between the tops of my shoulders and the bottoms of my ears. Finding out that my trial drug (alectinib) is shrinking my brain tumors was the news I needed.  I’m thrilled to say the least. … Continue reading →

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Moving Through

Posted on April 7, 2014 by

I’m the kind of girl who likes to know where I stand at all times.  I’m often most uncomfortable when I don’t know what I think or feel on a particular topic or subject. Lately, I’ve been stuck in who-knows … Continue reading →

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Great Explanation

Posted on March 12, 2014 by

Yesterday, I watched a great video of lung cancer expert, Dr Ross Camidge at University of Colorado.  I was referred to this video from two different blogs I read Gray Connections and A Lil Lytnin’ Around the World.  After watching the video … Continue reading →

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Ahhh…Much better

Posted on February 17, 2014 by

Thank you Last Week for finally coming to an end! The final day did end on an upward note. My difficulties with OHSU and my written testimony got completely straightened out. Apparently it was a big-fat-misunderstanding a new employee had … Continue reading →

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Borrowing Words

Posted on November 21, 2013 by

Last week SW, my sweetie, wrote a great piece for Consano addressing Lung Cancer Awareness.  I thought it was great.  I must share it too! From Consano Blog: An Intimate Awareness of Lung Cancer Author: Spencer Williams Nov 14, 2013 My … Continue reading →

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Dressed for Radio

Posted on November 5, 2013 by

Last night I participated in the Stupid Cancer! Show with a favorite of mine Katie Brown from LUNGevity and Dr Lynne Eldridge who I also know from LUNGevity.  We talked about, of course, Stupid Lung Cancer! The Stupid Cancer Show … Continue reading →

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Hold Steady Little Lung

Posted on July 19, 2013 by

The lung is holding steady; unlike my emotions. I was overly nervous about yesterday’s check up on the lung for many reasons.  I’m not feeling symptomatic but the slow progression for 6 months makes a girl antsy.  Will now be … Continue reading →

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Tour at OHSU – Dr Sandler Interview

Posted on January 10, 2013 by

The final piece in my OHSU tour last week was a sit down with Dr Sandler (Dr S).  It confirmed, once again, he is the perfect oncologist for me at this point in my life. I really enjoyed how he … Continue reading →

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Goofy Video on Targeted Therapies

Posted on January 8, 2013 by

I found this video poking around the Lung Cancer Mutation Consortium website this AM. (The map on the home page is a little out of date.  My cancer center OHSU is a recent member of the consortium.) The video below … Continue reading →

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Tour at OHSU – Dr Chris Corless’s Lab

Posted on January 4, 2013 by

Yesterday was a big day for me.  I was extended an invite by my oncologist, Dr Sandler, to attend a tour at my hospital, Oregon Health and Science University, that was scheduled for Chris Draft, co-founder of Team Draft. Details … Continue reading →

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