About Kim

KW photo from SWHello.  I’m Kim.  Kim Wieneke, living in Portland, Oregon.  I’ve got lung cancer and I’m not very happy about it.  It pretty much sucks.

At age 34, I was diagnosed with Stage 3b lung cancer on May 11, 2011.  On September 14, 2011 I learned that my cancer spread.  It is now considered incurable.

Each day, I get better at “living with a terminal illness”.  I don’t have it mastered; I certainly don’t I have all the right answers.  What I do have and openly share, in my writing, are my experiences and how they impact me.

This blog is my story for friends, family, and fellow travelers.

Kim

58 Responses to About Kim

  1. Diane Fink says:

    Hello Kim !
    it’s Diane (Ray and Tina’s friend & Ray’s former co-worker) Happy to see your blog, congratulations on the getting it up and going. Good to hear from the last scan. Hang in there and sending my LOVE & PRYAERS ! hope today is a GOOD ONE ! one day at a time !!

    Diane W. Fink
    PEC
    Charlotte NC

  2. David Stacy says:

    Kim,
    I too worked with Ray at Progressive Engineering in Charlotte. I am so sorry to hear about your cancer. My wife has had tyhroid cancer, resulting in the tyhroid’s removal. Cancer had also affected her vocal cord nerve and forcing its removal as well, leaving her voice permanently weakened, kind of like a really bad sore throat. The cancer has now returned to somewhere in her lungs. In two weeks she has to swallow a radioactive iodine pill, her second (the first was after the initial surgery). We are hoping that this will destroy the buggers. Anyway, know that we are thinking of you and can definitely relate to your situation. Keep up the blog, and the positive attitude you are showing there.

    David Stacy

    • kimmywink says:

      David,

      I often hear people refer to thyroid cancer as the “good cancer”…nothing about your situation sounds good. Who is the stupid person who called it good in the first place?
      Sounds like you and your wife have a bumpy road ahead. I wish you the best while traveling it.

      Kim

  3. Cathy McIntosh says:

    Oh….Kim….my heart is soooo sad!!!! May God comfort you tight and give you peace! I love you and you need to stay STRONG….that is what Kurt would want!!!!! God has another Angel to watch over us! Remember I’m alway here for you! Love you, Cathy

  4. Cindy says:

    Hi Kim,

    My name is cindy, similar age as you, 36. I have lung cancer too. On the Crizontinibe as well.

    All the best

    • kimmywink says:

      I’ve often wondered if someone else like me was out there- you do exist! Wish you much success on Crizotinib.

    • Hello Kim, my girlfriend Hitomi was recently diagnosed with stage IV lung cancer, ALK positive non smoker. She is currently on her second week on Crinzontinib. Can you please tell me your experience so far being on the drug? How long have you been taking it? Did it shrink your tumours or stop from spreading?

      • kimmywink says:

        Hello,
        Crizotinib has been very successful at managing my cancer growth for 2.5 years now. Take a look at the blog and items tagged “crizotinib”. I wish your girlfriend Hitomi a positive response! Take good care of her. 🙂

  5. D says:

    Hi Kim. I’m a Pfizer representative for crizotinib in Philadelphia. One of my physicians has a patient who is in her early 30’s on crizotinib. She’s an athlete too and is a favorite amongst the team who treats her at Penn. If you want maybe I can forward your email address on to her doctor and you two can link up. I just turned 30 myself and can’t imagine what a diagnosis like this must be like at such a young age. It might help to have someone like her to talk to. Just a thought. 🙂

  6. Lynn Gauvain says:

    Kim,
    I’m not quite as young as you,57. But I was diagnosed with lung cancer in Feb. I am on my second round of chemo. I had radiation for 10 days back in May. I have just now gotten the taste buds back. Except I now hate the taste of coffee. My last PET was good, but my platelets seem to have a really hard time bouncing back.
    I never was one to ride the roller coaster at the amusement park and I would like off of this one.
    I find your honesty refreshing.
    Thank you for sharing your journey. I will be praying for you. I will also stop in again to see how you are doing.
    Thank you
    Lynn

    • kimmywink says:

      Hello Lynn,
      The body sure does take a beating when it fights back against cancer. I wish you strength and confidence in the decisions ahead of you.
      Do keep me updated on your next PET results.
      Take care-

  7. stacy vege says:

    Missing: 1 best friend.
    I’ve been looking for her for a very long time…awesome athlete. beautiful person. she will kick your ass at pool. And she will dye your hair with Sun-In and tell you it looks great even when it doesnt look so great. I miss her. She makes me laugh. Her bestie is right around the corner if she would like to look.
    xo.

  8. lauramccracken589158735 says:

    Hi Kim, So glad I got to meet you! I never met another lung cancer survivor my age before. Thanks for the advice on places to go in the NW, helped me a lot planning our trip. Hope we can keep in touch online. Keep blogging! 🙂 **hugs**

  9. Cathy McIntosh says:

    KIM……YOU INSPIRE ME !!!! IT’S OK TOO BE SAD ,MAD AND ANGRY…..WHEN YOU HAVE CANCER THAT IS HOW IT FEEL’S ON MOST DAYS ….LIKE A ROLLER COASTER!!! BUT, I LOVE YOU AND I’M HERE FOR YOU …WHEN EVER….EVEN PLANNING A TRIP TO HAWAII!!! YOU’RE FIGHTING THE FIGHT AND WE’RE HERE FOR EACH OTHER…THAT’S WHAT FRIENDS ARE FOR!!! XOXOXOX JESUS LOVES YOU AND SO DO I 🙂

  10. Karen McDonald says:

    Hi Kim, my beautiful daughter Lynn 28 years old found out she had stage 4 lung cancer 5 days after giving birth to her second son. She fought very hard, but lost her battle 11 months later. Never even made her son’s 1st birthday. Lung cancer is a monster, I pray for you and others fighting this horrible, ugly cancer.

  11. Tia Kauffman says:

    I just heard you on 94.7 and thought “hey, that name is familiar, but the Kim I know is too young for cancer.” I’m a few years younger than you, but I grew up on the next street over from you in Washington Square Estates. So sorry to hear about your diagnosis. Cancer sucks!

    • kimmywink says:

      Tia,
      I’m learning that this crap can find you no matter what your age. Totally sucks! But, as in life we must deal with what comes our way. Hope you enjoy the blog!

      Kim

  12. William says:

    Don’t let anyone say it’s incurable, find friends alike, fill yourself with positive encouragement and don’t rely solely on chemo. Try to mix ancient remedies with modern medicine. I suggest I great book to start, Sexy Crazy Diet by Kris Carr.

  13. Rhianna says:

    Heard you on the radio. You sounded great.

    • kimmywink says:

      Thanks Rhianna.

      I must say…when I think of you I clearly picture the little tiny girl with two long braids in her hair wearing a soccer uniform. BTW, were we as bad at soccer as I think we were?

      Take good care, Kim

      • Rhianna says:

        We probably were that bad but it was fun 🙂

        When I think if you I always remember your laugh and how great you always made people feel. It was good to hear your laugh on the radio and great to bump in to you this summer.

        Let me know if you make it over to Bend any time.

        Take care

  14. Kim,
    I play game of war with your husband a he told me about your blog. It has encouraged me tremendously. I just started my own. Thank you for your honesty and posts. I’m praying for you.

  15. Hi, Kim. I’m sorry you are going through this cancer journey, but you sound like a fighter. I’m 65 and was diagnosed with Stage 4 lung cancer in October 2013 with metastases to the other lung and the liver. I’ve done 4 rounds of chemo and am now on maintenance. I take each day as it comes; that’s all any of us can do. Courage. 🙂

    • kimmywink says:

      Hi Ruth, Welcome to my blog. I hope you find it helpful as you navigate through your cancer world. Give it time to sink in. I’m pretty sure my head was either scattered or foggy for the first year…but that was me. Everyone experiences life differently.
      Take good care,
      Kim

  16. April says:

    Miss you…..environmental services isn’t the same without you.

  17. April says:

    I’m not good at social networking. but I think of you often and hope that you are well

  18. fred says:

    Lol to learn more about you
    Kim
    All the best fred mcgregor

  19. Sandy says:

    Kim,

    My husband has stage IV lung cancer with lymph node tumors and one brain tumor. Thankfully, Gamma knife took care of the brain tumor and the rest is responding to chemo. We lucked out that the path we were on took us to OHSU. The team there makes us feel confident. He will have his fourth treatment next week.

    I read all of your blog – ALL of it! Thank you for everything you write. It helps me so much as a wife and caregiver.

    • kimmywink says:

      Sandy,

      I must have missed your comment last August! I hope life is going as well as possible for you and your husband.

      Kim

    • Jacqueline says:

      My name is Jackie and I was diagnosed with stage 4 lung cancer in may 2016. I will get my first gamma knife treatment on tuesday to my brain at NYU in Manhattan. Please pray. So scary.

      • kimmywink says:

        Jackie,
        I wish you a successful gamma knife procedure. The things we do to ourselves out of necessity are simply crazy! I have found it all to be worth it. I hope you do too when you look back on this.
        Remember let your body sleep and rest- that is when the healing takes place.

        Kimmywink 🙂

  20. Damian says:

    Hi Kim, great to read you blog, I’m 36 living in New Zealand and on the same journey as you, looking forward to joining the positively Alk community 🙂

  21. Matthew Harrington says:

    What a wonderful Blog..thank you for sharing your struggle..may you find strength to carry on..

  22. Suzie says:

    Oh Kim… I don’t even know where to start. I heard this news last weekend and immediately reached out to some of our other old friends in disbelief, shock and sadness.. But then after reading your blog it made me feel that strength and support are better feelings to have, just as you have shown… We would love to get together with you… I know it has been a long time but better late than never right? My heart goes out to you and I wish nothing but the best for you in your journey. You were never one to shy from a challenge and I see that you are not shying away from this one. Over the years I always have wondered what you were upt o and how you were but lost contact with you. You’ve touch my heart and I can only hope to share your story with others. Would love to help in any way possible , but maybe just coffee to start. Hope you get in touch, I, we, are here for you…

  23. Amy Haaland says:

    Hi Kim!
    I am so sorry that I just heard about this today! I hope today finds you feeling okay. I think about you often! Would you believe that Spencer is 14 and 5’10”? Time flies.
    Keep smiling and fighting my dear!
    Amy

  24. Felix says:

    I have a beautiful friend – she’s 21 years old and small cell lung cancer – University , bright,
    articulate and incredible human being. It has spread to her stomach and is in treatments and
    is refusing chemotherapy but doing radiation.

    I think you’re story is inspirational – 5 years and hope..
    I wish you many years to come as I’m hoping my friend can have the same success.

  25. Anuj Agarwal says:

    Hi Kim,

    My name is Anuj Agarwal. I’m Founder of Feedspot.

    I would like to personally congratulate you as your blog Aquarius vs. Cancer has been selected by our panelist as one of the Top 10 Lung Cancer Blogs on the web.

    http://blog.feedspot.com/lung_cancer_blogs/

    I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 10 Lung Cancer Blogs on the internet and I’m honored to have you as part of this!

    Also, you have the honor of displaying the badge on your blog.

    Best,
    Anuj

  26. tyana says:

    I have stage 2 non cell lung cancer a. I am 29 years old and live in Oregon. I have done 36 rounds of radation and going on my 6th chemo treatment. I have seven rounds of chemo every three weeks. I try and be strong for my family and friends. sometimes I break down and loose it. it’s scary and sometimes I feel all alone.

  27. Marni says:

    Hi kim!
    So inspiring to read a little on here about you.
    My mom was diagnosed with stage 4 lung cancer this summer it has been a pretty scary road for our whole family though. A shocking diagnosis as I’m sure you know.

    She just started on Tarsiva we hope it works since she has an EGFR mutation. Crossing our fingers this will work for her.

    I wanted to reach out and find other people who are living with this, in hopes to give my mother hope. You are an example to me if living our life to the fullest. Thank you 👍🏽💪🏽❤️

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