June? Oh Sugar!

IMG_6987“Hello?  Are you there?”

It’s been a while. Feels a little awkward. Like calling back that friend you have neglected the last several days that have turned into weeks. What will I say?  What is the reason for my behavior? I don’t necessarily need to address why, but it would be kind to state.

I’ve been up to very little. Energy is holding steady at a medium low; my activities reflect that.

Next week my 42-month relationship with alectinib will end. Without skipping a beat I will get to discover in’s and out’s of Pfeizer’s lorilatinib (aka PF 06463922).

Today, I sit unsure how things will go over the next few weeks. I do know for certain, if I need help, I will ask for it. I don’t have a need to go it alone.

About kimmywink

I'm Kim. I've got advanced lung cancer. It sucks.
This entry was posted in Treatment Plans, Uncategorized and tagged , , . Bookmark the permalink.

20 Responses to June? Oh Sugar!

  1. Diane Lien says:

    Sending love your way❤️❤️❤️❤️

  2. Holly Pruett says:

    Oooh, I recognize that glass sculpture – love this photo and that you’re able to get out and about to partake of such beauty.

    It’s always so good to find you in my “in box,” Kim. We are in the midst of a very Big Move… from our longtime NE Portland home to leafy SW Portland, on a dead end above a creek. If you are up for venturing forth, I’d love to visit with you on our deck. Or visit with you at your cool digs. Either way, whatever you’re up for… even if it’s only these occasional posts.

    Best wishes for the drug switch-up and may many low-key summer delights come your way.


  3. Tammy says:

    You are incredible! Ask away.

  4. nmgleason says:

    That medium to low energy level reduces me to not having the emotional energy to even make a phone call, let alone write. Having a medicine change would have me feeling anxious. I am hoping that by writing your blog, you may now feel able to do the next best thing…whatever that is. Move a muscle, change a mood. If you can do that. Sending very energized, warm thoughts toward you. Nancy

  5. Alison Martin says:

    I’m here! 😉 great photo and great post! And you are NOT alone!!! Love love ❤️ Alison Sent from my iPhone


  6. g says:

    love you,

  7. marcia wieneke says:

    Kim, sending you prayers and wishes for a smooth transition to the new medication and hopefully another 40 plus good months on this recipe. Love from Aunt Marcia & Uncle Jerry

  8. Doug says:

    Hi Kim, I have following your blog for about 6 months. You are inspiring. I was diagnosed in Jan. 2015 originally on Xalkori and now on Alectinib for just over a year and its working very well. I wish you the best on Lorilatinib!

  9. kimmywink says:

    Hello Doug- Thanks for reading and leaving a comment. I hope you find this blog helpful. Wish you the best on Alectinib! Kim 🙂

  10. Melanie Poser says:

    Dear Lord its good to hear from you. Your always prayed for.

  11. Suzie says:

    I think of you all the time! need to do coffee again, or I can come over…

  12. Hope lorlatinib is treating you well!

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