Tuesday morning was brutal. I had a 7:30am appointment to get a cracked filling replaced. It’s been years since I’ve left the house by 7. I had enough coffee in my system to register the dentist say, “Kimberly, we need to replace this filling with a crown.” Sigh. Thinking of course you do I responded “okay”.
I headed off to my eye appointment, sore mouthed and temporarily crowned looking for some answers to the eye hemorrhaging. It took 2-hours to discover that the doctor I was scheduled with was not a retina specialist. Are you kidding me?! Attempt #2 to see a retina specialist will take place next week.
Wednesday afternoon the name on the caller id took my breath away. I wanted the call while dreading it. My treatment options regarding my growing brain tumor were presented to me. Wow. No smoking gun. Half-hour later I made my choice.
The growing brain tumor is not a lesion that is measured per trial. I have 5 trial lesions that are measured to determine if the trial drug is working or not. So technically, the trial drug is still working – and actually is since all other tumors in my body are still responding. If the growing tumor was a trial lesion I would be excused from the trial. Since it is not, I get to make some decisions on my own. If/when I radiate I will loose trial eligibility.
If I remain symptom free, I will see how the brain MRI looks in 5 weeks and take action if necessary. I suppose I made the decision to put it off. Seemed like the way to go.
Aquarius vs. Cancer 
Oh Ms Kim, I’m sorry that there are so many health issues piling on top of each other, and most of all, I’m sorry that a (new?) brain tumor is one of them. Cancer sucks, cancer sucks, cancer sucks!!! I love you.
Thanks Ms A. A walk in the park with puppy sounds like a good idea – when it is not 100 out.
Such tough decisions to make!
Where is that magic 8 ball when you need it?!?
Oh holy hell. Wtf doesn’t even cover it.
I agree. 🙂
I love you. I hate this.
Those are some major decisions Kim. I know you will make the right one. I haven’t talked to you for so long but I think about you all of the time. Girl you are strong, I love you!
Hello Matisse – it is wonderful to hear from you. xo
Man I Miss you Kim , I really want to thank you for what you did for me by letting me stay at your house among other awesome thoughtfulness that occurred. It helped me through some rough moments. You are truly selfless. I want to thank Spencer as well. How can I give back , how can I contribute? XOXOXXOXOOXXO M
Tough choices. Good thing you are an engaged, empowered patient. Hope the new lesion decides to vanish before the next scan! In the meantime, hugs.
Oh Janet…. That would make things so much easier. 😉 xo
Although I have never met you personally, I follow your story as I have a little boy with cancer. My heart goes out to you and the many others who are in this fight. As I read your post today I couldn’t help but think about this verse: James 1:5 “If any of you need wisdom, ask our generous God, and He will give it to you.” And also Proverbs 3:5 & 6 “Trust in the Lord with all your heart, lean not on your understanding, in ALL thy ways acknowledge Him, and He shall direct your path.” Please know that I will be praying that you will seek God, and that He will clearly show you what you ought to do. I say this with heartfelt understanding as we are in the same boat with some big decisions coming up. It is a tough place to be, but may you find refuge and help in God.
XOXO, Minty. Love and healing thoughts!