Stabbed in the Back

Last week I went to my Thursday set of OHSU appointments wearing my Bite Me t-shirt (tourist T from my last Hawaii trip).  I thought it fitting considering I was checking in for a long day at 8:15 am and had not eaten since the evening before.  My shirt was more of a warning for those around me, as in most women, when I’m hungry, I’m cranky.

This was my last uber-busy day for a few weeks. I knew it was going to be draining.  The greatest difference from the prior 3 weekly appointments was this time a lumbar puncture would take place.

The lumbar puncture was done to take a sample of my spinal fluid.  My fluid will then be tested to see how much of RO5424802 is in that fluid.  In a perfect world, lots of little drug parts will show up in the fluid.  Hitching a ride in this fluid is how this drug reaches the brain.  Once in the brain, hopefully it can stop all the tumors up there from growing.

The puncture itself was not painful.  Laying flat for nearly 2-hours after the procedure was a challenge.  I was on a strict schedule to eat and take drugs.  Why? Because I would need to report back to oncology to do 4-hour, post drug dose labs.  Eating would get this process started.  I managed to semi-neatly eat my so delicious yogurt; eating my granola was very messy.

ktmAll eventually worked out.  I was able to be taken home around 5:00pm by my sweet friend Tracy, who was with me every step of the day.

The days following it were another story.  I had/have some severe headaches when I transition from horizontal to vertical.  I’ve been downing the tylenol which seems to help a little.  Oddly, I feel better in the evening, not-so-much in the morning.  I’m back to needle felting and watching netflix in bed.  I anticipate being fully recovered by the weekend.  Looking forward to that.

About kimmywink

I'm Kim. I've got advanced lung cancer. It sucks.
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6 Responses to Stabbed in the Back

  1. Mark Hawkins says:

    Wow, makes my bumpy bus ride to and from work, and my work day seem pretty easy compared to your hospital day! When will you learn the results from the “tap”? Hope you are feeling better soon! Thinking of you. Mark

    • kimmywink says:

      I’m not sure when the results will come in. In a perfect world I’d find out immediately but I don’t think that is going to happen. Sigh.

      Enjoy the people watching on your commute. 🙂

  2. g says:

    marks says it best – “thinking of you” is right – i am, gwendolyn – hope headache goes away

  3. Pam Witt says:

    Oh how I feel for you!! Zach had a spinal headache for a week after one of those lumbar punctures, and it was no fun! I knew that he felt terrible if he was on the sofa. But laying flat really helped him. It took about a week for him to recover from that! I do hope and pray that you are back on your feet again quickly! Also, Zach is hitting close to his three year mark since his relapse. He continues to do pretty well on the Crizotinib. You know how it goes, one month at a time!

    • kimmywink says:

      Little Zach? Ouch!
      I wish him years and years on Crizotinib.
      It’s nice to connect with those who understand the month to month or day by day thing. Keep in touch Pam. 🙂

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