As I suspected the last handful of days have been crazy.
The birthday. That was great considering I had a dentist appointment that day. I really dislike the dentist. Somehow, I managed to be showered with birthday gifts from my friends and family. At 36 this seems worthy of a giggle, but, I’m not turning them down!
Wednesday, scan day, was so-so. Things moved ahead of schedule which made my five stops at OHSU seem tolerable. I decided I don’t like brain MRIs. Clocking in at about 45 minutes and full of bangs and knocks. I would not be sad if they never happened again.
Dr S appointment yesterday was the pits. I learned that my cancer is growing; changing treatment is imperative. I showed several small spots in my brain. (Poo!) The reason I have not been symptomatic is because I have no brain swelling around the tumor locations. I suppose that is a good thing, the no swelling bit. Although, it is scary to think that other people out there have spots and are unaware of it too. I’ll begin whole brain radiation (WBR) next week – Tuesday. (I’d add a link to explain WBR but I’m not really ready to inform myself of what it will do to me.) I’m signed up for 14 treatments. Looks like I’m not getting out of future brain MRIs after all. Oh joy.
I stopped crizotinib yesterday. I will go back on chemo once my noggin is done getting hit with radiation. The type of chemo is to be determined. I showed some “thickened left lung wall lining” in the spot where I had cancer before. Could be growth; could be nothing. My rock star doc is going to be analyzing the images and comparing future approaches for attacking the cancer while I’m in radiation. I could keep on crizotinib, I could not. Looking 5 weeks out is not on my to-do list!
So, pretty much yesterday afternoon sucked. My 20-minute follow-up appointment with Dr S evolved into a 10-2:00 day at OHSU. I got to hand it to Dr S though. Once he shared the news with SW and I, he told us that the recommended radiation oncologist was already on his way down to meet me. He, Dr Holland, and his staff showed up rather quickly and gave us the WBR spiel. An hour later, we were headed to radiation oncology to cross T’s and dot I’s for me to begin treatment next week. Made for a long productive day.
The evening could not have been better. Eight of my dearest girlfriends came by to give me hugs, ice cream, chocolate, cheese, flowers, and GRAPEFRUIT! (The one fruit I was not allowed to eat while on crizotinib.) The only thing it took from me was a 2:30 shout out via email to the eight of them saying, “I need some love!” and they were there in an instant. (I love you all!) Thankfully, one skill I’ve fine tuned is asking for support when I need it.
Now, it’s Friday am. The sun is shining. My coffee tastes great. The cat did not poop at the front door. Besides my eye lids being the size of grapes life is pretty normal. I am nervous about what unfolds in the next few weeks. I am not ready to stop treatment (yet). All I can say is, bring it on!