Over the last few weeks I’ve spent a lot of time studying my disease. Finally, I am able to do it comfortably.
When I was first diagnosed with cancer last May my oncologist said to me, “Don’t look up lung cancer on the internet. Have your friends or family do it.” Quickly I learned why it was a no-no. Headlines like “Lung Cancer is #1 killer” and “Lung cancer kills more people per year than breast, prostate, colorectal, and pancreatic cancer combined” are bad for moral. I should have delegated this task but asking Spencer or my mom to do the research would not have been that much better.
In my quest to find others like me, I’ve been forced to face the gloomy headlines again. This time around, for some unexplainable reason, it was not quite so painful and scary. Because I was handling the situation quite well I decided that it was time to collect information about my disease. Having a better understanding of my illness will better prepare me for my future.
Overall, the internet research has been fair. After skipping through the first 3 pages of death stories and cancer clinic advertisements I stumbled upon two websites that have become a part of my daily routine, GRACE and LUNGevity.
I have found the information on these websites to be accurate, up to date, and moderately easy to understand. The target audience for both sites is an well informed group. A lung cancer novice may find it difficult to process.
If you are interested in understanding more about “my” chemotherapy future watch this video. It is a positive video that explains the future for ALK positive Adenocarcinoma Non Small Cell Lung Cancer people.
If you are watching the video, I’d like to remind you that the chemotherapy I am currently on is Crizotinib.